Merely Me !!!

thanks for the message :-) it's very nice to meet you too.

i'm very rarely on the PLM board, so i hope ypu see this here.

i most definitely take Provigil !! it's become my Miracle Med :-)

i first took it about 5 years ago, at the beginning of my MS. it was SUPER expensive, and i didn't really need it after awhile. i took it for about 3 months at the beginning.

my main nemisis with MS has been Optic Neuritis. i eventually lost all sight in my left eye. i also became Steroid Depentant, because of all the mega-doses of steroids i had to take for about 2.5 years. the ON kept coming back everytime i'd go down to about 20mg of Prednisone. what a pain in the ass that was!!

i was on Copaxone for about 2.5 years too. i stopped taking it because i'm stupid!

i was doing very well until about May of 2008, when i started to get all kinds of Relapses. first it was Vertigo, then it was Fatigue, then again Vertigo and again Fatigue, etc.

i got back on Provigil, but at the time it was super expensive (still). somehow i managed to scrape up enough money to get it for October, November & December, 2008. i would take only 1/2 pill, or 50mg... because i couldn't afford more than that.

but now, our government has included it in the *Medicine Basket* of medications that are highly subsidized by the government. instead of paying $110 per month, i now pay about $18 !!! :-)

i'm now taking 100mg every morning and loving it. it really works for me. i'm not in a Relapse or anything, but i know that Provigil is making my life a whole lot more *clear*.... i can focus better, i don't tire so easily and in general, i feel a whole lot better.

the whole MS story is a hard one to adjust to. i would suggest to you that you just take it one day at a time, and not let the whole big picture overwhelm you... because if you think about the *Whole Thing*, you'll just go crazy.

please e-mail me if you want, at adriana.derry@yahoo.com , or just leave me a message here on the blog. like i said, i'm very rarely at PLM anymore... i'm just too busy doing so many fun things :-)

i wish you all the best, and a wonderful day!!!

adriana

of Provigil and hopefully never needing to take it...

i finally bought Provigil today. it's for MS Fatigue. it cost $108.00 !!! i hope the entire box sits, unused, forever :-) that is my prayer to The Almighty this very second.

i never, ever, never, ever want to have another bout of Fatigue in my entire life, in which i plan to live to the nice age of 120, minimum.

MS Fatigue is just horrible. it hits the inner core of your being. it's something so incredibly incipid that makes a zombie out of of a person.

anyway... may the horribly expensive Provigil sit in my meds box until it expires.

peace out everyone !! :-)

another great day !!

it really makes a huge difference when i'm feeling good, *normal* and just all-round great. i can function all day long and i get lots done. it's about time. all i need to do now is connect one good day after another, after another, etc.

i'm just waiting for December 4th, when i have an appointment with my neurologist, Alisa Taliansky. she's a *graduate* of Tel HaShomer, which has a bit different out-look on MS. it's not bad, it's just different. and since she knows that Carossis is my main neuro, she is completely blown out of the water when i want to change things around or want something new.

if i have to i'll be tough with her. i REALLY don't feel like going to Carossis just to get a prescription for Copaxone. i will kill her if she even hints that she wants me to see him first. i have more than enough shit going on in my life without having to visit Dimitri Carossis, thank you very much.

anyway, the trip to the bank today almost turned into a crime scene. the computers were still down when i got there and i had to beg, beg, beg to withdraw a mere 200 shekels. but i'm grateful that i was able to get the money, even though it was a huge pain in the ass. I HATE BANKS !!!

i'm beginning to fall asleep on the keyboard.... it IS 1:30am and i've had a long day.

peace out everyone !!! :-)

aaahhh.... Shabbat !!

i LOVE Shabbat. i'm not religious and it has nothing to do with the fact that Israel pretty much shuts down because of the religious link to Shabbat.

i love it so much because everything is so quiet and slow. there are barely any cars driving around Modiin all day. there aren't many people (kids) making all sorts of noise.

it's very peaceful here on Shabbat. it's wonderful !!

i'm feeling much better today. yesterday i took it every easy and even had 2 naps. i cooked a bit in the evening. i cleanded the kitchen up... still have a bit of things to do, but nothing like it was before. we just have to gather up all the dirty dishes that are strewn all around the house. all 3 of us tend to leave dishes in various areas. this MS bout seems to be calming down. at least i can actually some regular houselhold things without wanting to just hang myself afterwards. the MonSter seems to be crawling back into it's cave ;-)

i'm going to cook honey-garlic chicken for us today. YAY !! finally... getting it done :-) or..... maybe i'll have Nina make us stir-fry and i'll do the chicken tomorrow. we'll see.

that's it for me, for now.

peace out everyone !!! :-)

week 3, day 5

i'm doing really good on the food part. i'm hoping for the best on the fitness plan next week.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

food is as follows:

meal #1: omlette (4 eggwhites + 1 whole egg), steel-cut oatmeal, 1/2 cup skim milk, 3 dates

meal #2: smoothie -- 1 banana, 1 pear, 1 apple, 1 cup skim milk, 2 scoops protein powder

meal #3: tuna sandwich with 2 slices of lite whole wheat bread, 4oz water-packed tuna, a tad of mayonnaise to hold the tuna together, garden vegetable salad

meal #4: smoothie

fitness plan for the day:

NOTHING !! can't do anything because of my RRMS (relapsing / remitting MS)

onward and upward (even though i want to just scream to the skies)

the MS seems to want to kill me !!!

*just when i'm almost out..... they pull me back in*

i HATE this auto-immune chronic illness !!! HATE HATE HATE HATE it !!! i'm tired of all the shit that has been happening to me these past few weeks. i'm fed up with having to deal with crap that my body does and that i can't control !!

i'm tired. i'm having a bad Fatigue day and i'm tired of it all !!!! gggrrrrrrrrr :-(

i'm going to get the Provigil at the end of the month. i'm going to see Talianski asap and get back on Copaxone. i'm going to DO something about all this. i can't keep living like this.

i'm not used to having one Relapse (bout) after another and i'm just not going to put up with it anymoe.

no more. no more. no more.

nuf said.

peace out everyone (even though all i want to do right now is slap someone real hard)

the MS seems to be calming down

it's been a good day so far. i've felt much better, thank God.

the brain fog and Fatigue seem to be almost gone. i'm a bit tired right now, but that's most probably because i've been up since 6:30... again.

i plan on just resting the rest of the day, just to make sure that i don't over-exert myself and have a relapse.

i LOVE *good days* !!

here's to many, many, many more

peace out everyone !!

blah

how does a good morning turn around into a bad afternoon so easily ?

yikes. i don't like this. not one single bit.

i can't think properly (MS Brain Fog), i'm quite tired (MS Fatigue) and i just want to yell (over-all frustration !!!)

i'm discombobulated right now and i need to rest. actually, i need a break from all these odds-and-ends that have been happening to my body in the past few weeks. maybe i'm having a major flare-up and i don't even know it.

should i go to my neurologist ? just thought of that. maybe i should. hhhmmm... not that i'm dying to go to any doctor, but maybe she'll be able to help me. who know.

off to rest for awhile.

peace out everyone !!

spoke with Kaufman.......

he told me get off the Baclofen because the side-effects out-weight the good-effects :-(

i've been getting having progressive Fatigue, Malaise and just a feeling of *uck*. i'm sure that it's due to the Baclofen.

no biggie. i've made it this far without it and the cramps will eventually go away.

now, i have to start working on the website with more gumption. i didn't do one thing on the site today... well, i did some silly things, but nothing really productive.

tomorrow is a new day, filled with great hopes and dreams. i'll get a good night's sleep and wake up feeling like a new adriana :-)

peace out everyone !!

it's been a great, long day....

i just looked at the time and was shocked to see that it's not even 8pm !! i was sure it's about 10. i've been up since 6:30. i guess my days are just getting longer and longer.

i finally got Baclofen, for the muscle cramps from my waist down. it worked like a charm. i was able to workout without any cramps, without any pain :-)

the dr, not Kaufam, told me to start out slowly with the new med, to make sure that i don't have any bad side-effects. i had a great-effect !!! i got completely stoned with just one little 10mg pill :-) !!!! i felt great. Rico and Racheli had a good laugh when i told them that their mother is completely stoned.

now i'm going to go and relax for the rest of the evening. i'll watch some tv and just enjoy the end of this wonderful day.

peace out everyone !!! :-)

A REAL INSPIRATION !!!

and to think that we have problems in our lives...... really makes one think of all of God's Blessings in our lives :-)

what is Multiple Sclerosis ?

just click on the arrow to start the video.